It was another week of goods and bads for Miss Navy Rose. Here’s a brief update. 

We weaned her all week off her medications and sedations which was tough to watch, but good for her. She really displayed her fighter mentality to shake through that. 

However, she had a fever yesterday and tested positive for a blood infection. She has been really uncomfortable and hasn’t been able to get back to her baseline, so they actually put her back on all that medication we just weaned off of. 

To make things a little more difficult, and uncomfortable for her, a lymph node was bothered during surgery and so it’s stopped working. Its job is to process the fats in milk and help the lungs out. It’s not doing that job, so a fluid is building up between her lung and lining making it difficult for her to breathe. We reinserted a chest tube and it’s  continually discharging this fluid. They are playing with Heather’s milk, making it more like skim instead of whole, but the fluid is still gathering so it’s a little weird. 

As for goods: breathing tube is out, Heather was able to hold her again for awhile, and the Ronald McDonald House hooked us up with Disney on Ice tickets. Kai is especially spoiled as he is at Bear Lake with the in-laws for the weekend; Heather and I might even go on a date tomorrow and see a movie. 

If I can end with a quote or thought, I’ve been pondering on this idea of looking at a glass half-full or half-empty. The thing is that grief and gratitude can coexist; the glass can really be both. In fact, getting grammatical, we can live in a world saying and instead of or when it comes to half-filled glasses. I’m trying to apply the idea to honor where no water is but be excited for where the water is. Things do suck and we acknowledge that, but we also see tender mercies and can acknowledge that, too.